top of page

​To Zoja, Bojana, and the Mirosavljevic Family for inspiring this mission, thank you.

To Helene and Mikk Cederroth and in memory of Emma, Hugo, and Wilhelm.

​​

To the organizers of SIDM (Society to Improve Diagnosis in Medicine) 2022 for the invitation to speak in the Best of the Best Abstracts section to get the word out about this mission.

​

To the co-authors of the 2026 letter to the editor: 

Helen W. Hernandez, Helene M. Epstein, Dr. Mohamed Zahir Alimohamed, Helen Haskell, Dr. Alexios-Fotos Mentis,    Dr. David A. Pearce, and Dr. Michael Kanter

​

To Dr. Mark L. Graber for insightful discussions and for accepting the letter into the journal Diagnosis

​

To Lynne Muli, Sidney Muchemwa, Maximillian G. Kilipamwambu, Anthony Neubacher, Erica Barnes, Sakshi Kasat, Arpit Mishra, Carolina Sommer, Kimberly Haugstad, thank you.

​

To Dr. Steve Straughter for his support and hosting the Lunch n' Learn to get the word out even further.

​

And to all the supporters of the first [ultimately rejected] proposal to the CDC and (language inspired by Dr. Ron Wyatt) we will persist!

​

Amanda Griffith

Anthony Neubacher

Bojana Mirosavljevic - Mom of Zoja

Bruce Bloom, PhD - Chief Collaboration Officer, Healx. Chief Science Officer, Kabuki Syndrome Foundation

Bruce Windoffer - rare genetic disease Dx professional

Carolina Sommer - CEO/Founder of Born a Hero, Research Foundation and Co-Founder of NW Rare Disease Coalition

Carter Hemion - multiple rare disease patient

Danielle Connolly

Devon B. Cooper

Dr. Alexios-Fotios A. Mentis

Elmira Safarova, PhD - Rarus Health

Erica Barnes - Minnesota Rare Disease Advisory Council

Executive Director, Avery's Hope

Gareth Baynam - Medical Director, Rare Care Centre, Perth Children's Hospital

Helen W. Hernandez - KAL Research Initiatives LLC

Helene Cederroth - President of the Wilhelm Foundation. Co-founder Undiagnosed Disease Network International (UDNI)

Helene M. Epstein - Board Member, Society to Improve Diagnosis in Medicine. Steering Committee Member, Patient-Partnered Diagnostic Center of Excellence

Jenny Sloane, PhD - Baylor College of Medicine

Kendall Mason

Mark L Graber, MD FACP - Founder, Society to Improve Diagnosis in Medicine

Melinda Chaperlo - representative of the undiagnosed community

Ms. Lynne

Our Stories Rx - friend of Helen Hernandez

Rare Disease Patient

Sarah Tompkins

Stephanie Tomlinson - Patient Advocate/Board Member UDNF (Undiagnosed Disease Network Foundation)

©2026 by KAL Research Initiatives LLC. Proudly created with Wix.com

bottom of page